On Nov. 18, 2014, Mats Steen died from Duchenne muscular dystrophy. The 25-year-old Norwegian video gamer had been diagnosed with the disease as a toddler, started using a wheelchair at age 10, and spent the latter stages of his life barely able to move his fingers. Though his parents, Robert and Trude, knew their son wouldn’t live much longer, the news was still nearly impossible to fathom. “You can never prepare yourself for losing a child,” Robert says, sitting beside his wife in a recent Zoom interview.Over the previous decade, Mats had spent about 20,000 hours playing World of Warcraft, an online role-playing fantasy game. He’d also started a blog, sharing musings about his condition and ambitions while confined inside his parents’ Oslo home. As friends who lived nearby provided the family with food, flowers, and condolences, Robert and Trude felt they needed to relay the devastating news to their son’s virtual friends. So they opened his blog and posted a final…
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